Rare Cancer Congressional Briefing

A SHEPHERD Foundation Event
June 20, 2018 • 11:30 - 1:00 p.m. • Rayburn House Office Building
Lunch Served • Staff Welcome

Millions of People Who Could Be Saved Should Not Be Left to Die

Rare cancer isn’t rare. Using the definition of rare disease as that which afflicts <6 people per 100,000 per year, in 2017, 374 out of 396 identified cancers were rare. This equates to 30% of all diagnoses in the United States.

Unfortunately, effective treatments ARE rare. In 2017 alone, 261,434 new cancer patients were not eligible for any first or second line FDA approved targeted therapies. Many rare cancer patients face standards of care that are decades-old, and reliant on harsh chemotherapy and radiation regimens.

Wednesday, June 20, 2018 • 11:30 a.m. to 1:00 p.m.

2045 Rayburn House Office Building

Lunch will be served at this event, and staff are welcome.

This event will include a panel presentation by diverse leaders in the field of rare cancer, including patients and researchers, including MD Anderson and Massachusetts General Hospital.

Please RSVP  by contacting Becky Watts at 202.415.6802 or bwatts@G2Gconsulting.com

This is a widely attended event in accordance with House Committee on Ethics.

Honorary Co-Sponsors: Rep. John Moolenaar, Rep. Henry Cuellar, Rep. Sanford Bishop, Rep. Martha Roby, Rep. Debbie Wasserman Schultz, Rep. Rosa DeLauro, Rep. Scott Taylor


  • FUND
    research and
    for every form
    of rare cancer

  • INVEST in
    medicines for
    rare cancer
    neglected by
    other companies

  • BUILD disease-specific
    foundations for
    every form of
    rare cancer